Author Topic: New member to a club I never wanted to join  (Read 1445 times)

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Offline Leslie

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New member to a club I never wanted to join
« on: March 24, 2018, 07:55:58 AM »
My husband died of MSA (Multiple System Atrophy- a rare neurological condition). We had 23 extremely happy years together. I was able to care for him at home and he died gently in my arms. Although it’s a comfort that he didn’t have to go into hospital, I am still reeling and inconsolable. I feel I am just going through the motions of living. The grief waves hit me when I least expect it (in the middle of Waitrose, for example). If it werent for the dog and cat, I don’t think I could get up in the morning. I don’t l know  how I will cope when I have to go back to work. Every day hurts because it’s farther away from the time when he was still with me. What is strange is although I nursed him for two years, his death still comes as a shock. Can’t eat, don’t want to live.

Offline Emz2014

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Re: New member to a club I never wanted to join
« Reply #1 on: March 24, 2018, 08:14:39 AM »
Sending a welcome hug  :hug:
Try not to think too far ahead, concentrate on day by day at the beginning and on really bad days hour by hour, it helps on this journey :hearts: xx
Even the darkest night will end and the sun will rise. 
Hold on in there xx

Offline sallymk1

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Re: New member to a club I never wanted to join
« Reply #2 on: March 24, 2018, 03:25:41 PM »
Welcome Leslie to a club none of us wants to be in. I am so sorry for your loss.  Even if death is expected it still hits you like a steam train when it happens. You will be numb for some time and experience thoughts and emotions you did not think possible. As you are finding they come out of the blue. There is no remedy, take whatever help you can get. Even if you don't feel like eating, which you won't try to have small meals and to get some rest even if sleep is elusive for you.  Friends and family mean well, sometimes they can be a clumsy with words, no let them bother you, its hard for people to help and support and mainly they try to find something comforting to say but because we are sensitive it all seems to come out wrong.
Do you have family or friends around you? This can be a good thing but can sometimes be overwhelming so just do what you think fit for that moment in time.
Take care, you are not alone, I cannot give you peace of mind or your hearts desire but I can wish for tranquility and hope for you.
It is unfortunately fairly normal to have the feelings of not wanting to be here. Please if it gets to bad consider getting help as there is plenty out there.
Wishing you a better tomorrow
Pam